When I found out my preemie would need a feeding tube I felt excited and terrified.
I was ecstatic that we finally figured out what was making him so sick and thank the lord there was a solution!
I was also terrified because blood and bodily fluids often left me pale as a ghost, passed out on the floor.
(Raise your hand, if, like me, you’ve woken up to smelling salts more then a few times!)
I had no idea what I was getting into and how long a commitment this would be, but like you, I was willing to do whatever it took to keep my baby healthy and thriving.
After a day of training and a quick demo on how to change the tube out we were sent home and left to our own devices.
Looking back a year and a half later, I’m amazed at how much I learned through that experience and that we all survived it.
I’m happy to say my toddler is now tube free!
With that being said I wanted to share with you one of my biggest survival tactics.
MYEMERGENCY FEEDING TUBE KIT!
This baby was a game changer!
My little guy was an expert at yanking that thing out, especially in public places, or during nap time at daycare.
It seemed like if he wasn’t yanking it out, it would spring a leak once a month and fall out on its own.
After the first time being unprepared, and scrambling for the things I needed to change it out when shaking with fear and trying not to pass out, I decided I needed to come up with a kit to keep near us at all times.
In the left-hand side pockets, I keep a spare pad, some split gauze, adhesive remover, alcohol swabs, and of course my replacement button.
Notice how I store it with the little plastic stick in it, this will come in handy when it’s time to change it out or to borrow if you’re sticking the old one back in that your kid pulled out intact.
The middle flap has handy dandy elastic that is perfect for storing your smaller syringes. You’ll need these when you check or refill the water balloon. I also keep a small pair of scissors here to cut tape and gauze.
The back is a bit larger and is just tall enough to fit an extra tube and large syringe for when you forget to pack yours.
I also keep my tape and if he has any granulation tissue, the steroid cream.
Not pictured is the lubricant. I usually stick the small packet from his replacement kit in here but a small tube of KY Jelly would fit in here and get the job done.
I’m telling you if you don’t have a feeding tube emergency kit for your tubie you need one right away!
This always stayed in his diaper bag and I made sure to keep it stocked.
If something happened at daycare I had the supplies right there ready for me when I came in the door, or if something happened at home, I knew right where I could find everything to change it out quickly before things got too messy.